Saturday, February 28

Fork this!!!!!

The last few days I have been "flaring". That is with Fibromyalgia. I hurt, and I am tired, it is difficult for me somedays, because no one seems to "get it". No one understands when I just want to be alone, or don't want company, or like to "connect" with FB friends, because besides having Fibro I also am oral/deaf. MEANING: that I can speak clearly, but I cannot hear clearly at all, so, my "dallyings" on the internet are not laziness, or being boring, they are neccessities for staying in touch with the world. I was reading about the "spoon theory" today, and it makes the most sense I 've seen. The way it works, is if you have all the spoons in your drawer, and take them out....now imagine that every time you "do something" it will cost you a spoon...Ok, now you don't have a lot of choices, you only can make the ones that cost you the least spoons. So, you may get out of bed, but getting out of bed, and being ready to head out the door, will cost you maybe two spoons....etc...at the end of the day, all you have is energy for a meal. Ha! If you cook, two spoons, if you go out, may be too tired fatigued to drive home safely, and with the meds....Oh look out! Every thing I do, has to be measured with "spoons", some days I can borrow against tomorrows spoons, but then I have to realize I am short those spoons tomorrow which may mean I do less tomorrow, even if I want to do something. Plus being deaf and having PTSD which I still struggle with each day. Somedays are worse than others. It is hard not having control of the one thing you used to be in control of, energy, living your life. I have God on my side which is the only one I would want to trust my life to, but even then, I always try taking a little of it back at times, and HE says.....nope, no go.. So I have to just back away, and let HIM lead, each day is a little easier. Somedays just forget getting out of bed!!!!!! I no longer have the strength or energy to run after the things that are lacking, I just don't have the stamina or the ability Life is all about choices , and for me most times, I wish I had a full service setting......not just spoons.

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